Cumbria Down's Syndrome 
Support Group

Welcome to our site

We are a Registered charity and support group for people living in Cumbria with Down’s Syndrome and for their families & carers. We aim to provide support to new parents and give them opportunities to meet other families living with Down’s Syndrome. We are a source of local and general information regarding Down’s Syndrome and we hope to raise awareness and understanding of Down’s Syndrome in the local community.


Up Up and Away Early intervention sessions.

There is a lot to be said about early intervention and children with Down's Syndrome need additional support when it comes to learning how to sound out words and speak.

Professor Sue Buckley, who happens to live in Cumbria herself saw the need for a speech and language programme when her daughter was young. Today we have See and Learn, "Specialist, evidence-based apps and teaching materials designed to improve language, reading, speech, memory and numeracy outcomes for children with Down syndrome."

Debbie Austin from Up Up and away is coming to Carlisle once a fortnight to teach our children, and us how to use See and Learn. Debbie has 4 years experience of teaching see and learn as well as having a wealth of knowledge in other areas of Down's Syndrome, professionally and as a Parent.

The next Up Up and away sessions are listed below:

October 2018
TUES 2   10:30 – 12:00
TUES 16  10:30 – 12:00
November 2018
TUES 13  10:30 – 12:00
TUES 27  10:30 – 12:00

We will be using the Sensory room in
Carlisle Youth Zone.
Victoria Pl,

Please book places with Cumbria Down's Syndrome Support Group.

For people living in the South of Cumbria our lovely neighbours in the North Lancashire Down's Syndrome Support Group have invited you to join their Early intervention classes with Up Up and Away. 

September 2018
MON 24th 10:00 – 11:30
October 2018
MON 8th 10:00 – 11:30
November 2018
MON 5th 10:00 – 11:30
MON 19th 10:00 – 11:30
December 2018
MON 3rd 10:00 – 11:30 

Footsteps nursery 
Slyne Rd, 
LA4 6NZ 

North Lancashire Support Group:


Our next Free bowling session is at AMF Bowling, Carlisle.

October 5th

Starting at 6pm

A great way to socialise and meet new friends.

Body Shop Fundraiser

Rachel from Body shop at home contacted us with a fun way to raise funds for Cumbria Down's Syndrome support Group.

There will be demonstrations of hand massage & facial. Products available to purchase on the evening.  Prizes, raffles & drinks available from the bar.

The event is on October 14th At The Ibis Hotel, Carlisle.

Event starts at 4.00pm, refreshments are available from the bar.

Tickets are £2 each and available from Skiddle.

Numbers are limited to room capacity.

ibis Hotel, Carlisle

Halloween Walk


DSA "Tell it Right, Start It Right" Campaign.

In January we went along to meet Student Midwives at Cumbria University.

The Down's Syndrome Association Did an Amazing job of educating and raising awareness about Down's Syndrome amongst the students.
Members of our group each gave an informative presentation about their birth stories and one of our younger members aged only 1 came along to say hello.

The feedback from this was extremely positive and a lot of the Student midwives said they though it was helpful to speak to parents of children who happen to have Down's Syndrome.

Award Finalists

We are Excited To announce we are finalists in the North West Charity Awards.